Well I once again called to find out a status on the "finance approval". I am told that our insurance did not approve the transplant because the hospital is not in their transplant network. So I'm very upset right now.
The Transplant Coordinator (TC) says that this has happened in the past so they will call and explain that Avery has been under UTMBs care since she was born and hope they will approve it. So I asked well what if they don't approve it? Once again I'm not getting a straight answer, she says that we are hoping that it will get approved. They are working on it now. Ok well what if doesn't get approved? She said they will keep submitting the application over and over and over. No, that is not happening. I'm not going to keep submitting an application over and over after it continually gets denied. This is our baby and we NEED to at least know if one of us will be a perfect match for her. This is killing me. If we would have been informed that this could possibly take this long, then we could have turned in all the applications and paperwork a long time ago. I'm the one that had to keep calling her and asking when we can do it and reminding them to send me the applications in the mail.
I asked again if I can just get an idea how long this will take now that they have to submit paperwork informing the insurance that Avery's been under UTMBs care since birth. She says she isn't sure. I told her ok well if this has happened in the past then someone in her office knows how long this normally takes, so I asked her if she can ask around and find out. She said, "oh, ok I guess I can do that if you want me to". Oh my goodness. This is very stressful.