We have met with the transplant coordinator and turned in applications for Avery, Raul and myself. UTMB is in the "finance approval" stage. Prices of the transplant are being negotiated through the insurance. We are crossing our fingers and praying for the approval so we can make the first step and be tested for a possible match to donate of our kidneys.
This is very frustrating for me. The Transplant Coordinator is going to end up not liking me at the end of all of this. I'm always the one calling and having to follow up and check on the status and get an update. I always have so many questions and want answers NOW. I feel like I have to keep asking and asking to find out information. For example, I asked about how long it takes for the finance to be approved. She says, "well we are working on it the best we can and we'll do everything we can, it's in someone else’s hands". So I'm like Ok so what is an estimate of how long this normally has taken with other patients.
I'm not getting straight answers and that makes me very upset.