We have been learning so much. The MOST important thing is being very sterile when we put her on dialysis and take her off. We have to wash our hands a certain way, length, direction, etc. We also have to dry our hands in a certain way and wear a mask. Like in the movies when doctors are scrubing up for major surgery, is how we feel. It's crazy. It's very important to try our hardest to prevent infections in her peritoneum. Sometimes you can do every thing right and it happens so we have to take the extra precautions. We have to take Avery's blood pressure, temp and weight before and after her dialysis and keep it on our log sheets. Avery is having a hard time drinking her bottles. She loses her oxygen level when she's drinking. So we have to hold her a certain way and remove the bottle from her mouth after every 5 sucks so she can breath. She also isn't to interested in eating. Avery always feels full from the dialysis so whatever she doesn't drink by mouth we put in her feeding tube that is in her nose. We have to log every feeding so the doctors and feeding team can see how she is progressing. She has 2 or 3 supplements that goes into her milk at the feedings. She will go home with the feeding tube because she must gain weight in order to have a transplant. Avery has 5 medications she takes daily along with the shot 3 times a week. I have to come up with a chart or table so we can keep tract of her medications. The list goes on and on.... we are staying strong and positive for Avery. We know God wouldn't give us anything we couldn't handle. He gave us a special baby to care for and we are willing to do whatever it takes. Raul and I are here supporting each other every day. We do miss Alexa so so so much. She is staying with Raul's parents. They brought her up once and Rema has brought her too. Lexi is so sweet with Avery. She is always trying to take care of her and keeps telling her to hurry and come home so she can share her toys with her. We are happy we are here to care for Avery but we are sad we can't be with Alexa right now. We should be home soon.